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'I was wrongly diagnosed and told I had haemorrhoids for months before traumatic diagnosis'

manchestereveningnews.co.uk 2024/10/6

Lisa Snooks is now worried for the future after her ordeal

Lisa Snooks immediately after abdominal perineal resection surgery
Lisa Snooks immediately after abdominal perineal resection surgery

A woman says she it 'terrified' after cancer had been 'eating away' her bowel while her doctors told her she had haemorrhoids instead. Lisa Snooks says she was told to continue her treatment for haemorrhoids for months.

But the 43-year-old suffered excruciating pain that continued to get worse. Having pushed for cancer tests, an endoscopy and MRI revealed she was living with an aggressive form of anal cancer.

While Lisa is now in remission, her treatment has left her with low platelet count, having suffered damage to her bone marrow. The same condition caused her brother's death in February 2021 - and now Lisa is worried about her own future.

She said: "If I had been seen earlier and I wasn't wrongly treated for six months, my bowel wouldn't have been eaten away. To have anal cancer is not something I've ever heard of - as soon as you notice the smallest symptoms go to the doctors straight away.

"I don't remember much after being told I had cancer, I started crying and thought I was going to die and my life was over - I was just broken. It's terrifying, I lost my brother to low blood platelet count which I now have - I have the same faulty gene.

Lisa Snooks says she was misdiagnosed for months
Lisa Snooks says she was misdiagnosed for months

"I'm wondering if I'm going to beat this or die the same way as him, it's scary to beat cancer and still be in the same position." Lisa, from Barry, South Wales, first went to the doctor after experiencing haemorrhoid-like symptoms in June 2021.

The former lettings branch manager was prescribed treatments such as suppositories for five months. But her symptoms grew worse and she pushed for further tests.

She had an endoscopy in February 2022, before being rushed for an MRI scan, which led to her anal cancer diagnosis. Symptoms of anal cancer include bleeding from the bottom, small lumps, itching and pain, discharge of mucus and incontinence.

A permanent colostomy bag was fitted in March 2022 and soon after she began chemotherapy and radiotherapy undergoing six weeks of radiotherapy seven day a week and chemotherapy four days a week. However, chemotherapy left her with neutropenic sepsis which saw her whole body reacting to an infection.

Lisa Snooks in hospital following surgery
Lisa Snooks in hospital following surgery

After finishing treatment in April, she was booked in for surgery in October - but asked for the procedure to be postponed as she felt she wasn't mentally ready. While waiting for surgery, Lisa said she experienced high levels of pain and was haemorrhaging blood every day and required regular blood transfusions.

In February 2023, she spent 11 hours on the operating table while surgeons removed her pelvic floor, rectum and vagina leaving a cavity wound which she says has not healed and has to be repacked by nurses daily. Doctors also removed a large strip of muscle from underneath her right rib cage and skin tissue from her tummy to try and rebuild her vagina and create a cover for the wound - but the surgery was unsuccessful.

Now, Lisa has been in remission for a year but says she's still terrified of the future. She says she's waiting to undergo a second bone marrow biopsy to establish a cause and treatment path for her low platelet count - bus Lisa is now struggling mentally because of the stress following her ordeal.

"It started as something which looked and felt like haemorrhoids, it was painful to wear underwear and sit down and in the end it was painful to walk," said Lisa. "It started bleeding and then I became incontinent which was horrific.

Lisa is now in remission - but is still fearing for the future
Lisa is now in remission - but is still fearing for the future

"It's been 16 months since I got out of hospital but I'm still seeing nurses every day to pack the large cavity in between my legs which never healed up. I lost all my hair [during chemotherapy] and have been wearing wigs for two years.

"Mentally now I'm struggling, the last two years have been traumatic and I'm still living it every day. Mentally I'm drained and tired and scared for the future now, every day I'm scared of what's next. I've been in remission for a year, but I don't know how future looks yet."

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